Patricia (Patty) Berne died on May 29, 2025. I never had the pleasure of meeting her. We were not friends, or even in the same social circles. Hundreds of miles separated us. But nonetheless I felt grief, pain, and a bit of emptiness.
Author: Ashton Rose
Ashton Rose is a freelance disability blogger, SEO writer, creator, and educator. Writing professionally since 2019, they specialize in SEO-driven blog posts about disability, gardening, and mental health. Ashton has worked with dozens of clients across the globe on everything from blog posts to web copy, ebooks, and more. When not writing, Ashton loves to crochet, garden, play video games, and cuddle with cute animals.
They can be found on LinkedIn @ashtonrosewrites and on the web at ashtonrosewrites.com.
Happy Disability Pride month! What do the colors on the Disability Pride flag mean? Where does the design come from? Read on to find out.
Spoon theory doesn't adequately explain my functioning. How come, even when I have the spoons, starting a task can be impossible? Why does task-switching require a monumental amount of spoons, while doing grueling work for hours may demand very few? Enter spline theory.
My health has grown more complex, more difficult to support and bargain with. But my commitment to writing, to telling you these stories, has only grown. This quest may be ending, but there are untold others waiting to begin.
NO AI TRAINING: Without in any way limiting the author’s exclusive rights under copyright, any use of this content to “train” generative artificial intelligence (AI) technologies to generate text is expressly prohibited. The author reserves all rights to license uses of this work for generative AI training and development of machine learning language models. This … Continue reading No Post Today
This is a conversation between myself and artist, writer, and very good friend Charlie Andrés regarding a shared space we call Autism Afternoons. More information about Charlie and links to their stuff can be found at the end of the episode.
I had accepted the label of disability long ago. So what was I running from? Acceptance. That was my pursuer. It's one thing to claim disability and fight for my rights and the rights of others; it is another thing entirely to devote myself to building a life that nurtures my bodymind, rather than operating in spite of it.
The silent migraine is a uniquely hellish beast that, in my own experience, has proven far more resistant to taming than its more common cousin. Follow along as I break down what this type of migraine is and what it looks like for me.
Before self-diagnosis, I always felt like a piece of me was missing. I struggled with an internal sense of self because I felt I had no core to anchor myself to. I didn't respect my sensory needs, and in return they caused me mishap after mishap. Now, I just feel... happier. Calmer.
It's a lie crafted to shame nonnormative bodyminds which can't meet standards of productivity, output, and success. While it is true that you may be able to ignore symptoms for some time, they will always come back stronger than before. Disability is not something to be overcome; it demands respect and accommodation. It demands love.
Ashton Rose 