Every person who's disabled, chronically ill, or just gets sick or injured a lot understands the self-doubt about the severity of their symptoms. After a recent bout of pneumonia, I'd like to reflect on the value of trusting your gut and how it helped me avoid the most severe outcomes.
Tag: medical
There are interesting things to be learned about the relationship between pain and fatigue. Things that both help people understand the real toll pain can have, and help those of us in pain remind ourselves to take it easy.
Crip time gives me a space for that. In crip time, I am not tied to being 22 years old. I am not too young or too old for my impairments. There are no necessary qualifications to accept the validity of my crip-ness.
Episode 3 explores my first use of a cane, finally getting a diagnosis for my disability, and the effects that had on me afterward.
I take one step, then another, feeling the uneven field beneath my feet. One more step and the ball and I are perfectly in line. My left foot planted firmly into the ground, I bring my right foot back, toes pointed toward the earth. I don't have time to breathe.
I haven't been as active online recently, for two reasons. The first: I'm working on some ideas that I don't feel ready to share yet. The other: I've spent a lot of time in waiting rooms. Arriving at a new neurology clinic is scary enough. Everyone in this waiting area is at least 20 years … Continue reading Season 0, Episode 9: Waiting Rooms
Ashton Rose 